Monday, March 29, 2010

Autism you will not WIN!!!

Autism has taken something from me that I can't forgive him for. You have taken my preconceived happy memories. As a little girl I remember thinking I can't wait until my own son is singing his very first primary song in church as a sunbeam. I remember looking at all the proud parents of those little sunbeams and would think I can't wait until I can wave and smile at him as he stands there and sings his little heart out to us. Well, Autism you stole that moment from me yesterday, and you must be so proud that I ran out of that chapel crying because I was heart broken. Well let me tell you something you may have stole that moment, but you will not win. I will get that moment, I will steal my sons voice back form you. We are getting there and you will not win I will recover my son from you. I will not live in fear of you my whole life. So just know that I am coming after you. You may have won that battle but the war has just began. I will spend my life fighting for children's voice and I will take them back one voice at a time. My sweet Tucker man will sing to me one day in church, and I to will have my proud mommy moment but it will 100% more meaningful.

Wednesday, February 3, 2010

Amazing!!1

Time flies I can't believe it has been so long. Anyway so much to tell. Were to start well Tucker is doing amazing with ABA!! His ABA consultant didn't get to see him in December so when she saw him in Jan she could not believe that he was doing so well. He is using so many more words, she says besides his lack of speech she would not even think that he has PDD. I could not believe that she thinks he is doing so well, I thought so but I am just his mom right. So the ABA and biomedical treatment is really coming along, once we get him talking it will be like he never had it.
Anyway more exciting is that we got into Thoughtful House in Austin the best biomedical clinic in Texas. We went last weekend. Right when I walked in I knew that it was were we were suppose to be at. Everything that we have done up to now has been great and I couldn't have done it with out Amanda she is the best mother in law ever. (You truly have been a blessing and a strength to me these last few months you have truly given me so much hope that we could recover Tucker. Thank you) I feel like Thoughtful House is the next step in our recover path. With their help we will be able to make this happen. Tucker did so well, we were in the office for 6 hr, and he didn't cry once, he just sat and played and was amazingly good I could not believe it. We got to see a Nutritionist and she was great. I had tried to start the SCD on my own but it is a little harder then I thought so to have some one that knows everything about the diet helping me is great she gave me step by step instructions so I don't mess up. This diet is going to really help. Then we got to see the Nurses Practitioner he was very helpful and with his help we have made a plan. So hopefully we will be ready by the summer to chelate. Anyway, I am so happy that we are on the right track.
I know that this can be a long and hard journey for the parents of autistic kids. Just remember that there is hope and these kids are recovering no matter what people say, kids are recovering from this epidemic. Get biomedical help for your kids it will make the would of difference, also get ABA and other therapies. Don't give up keep trying. There is always hope.

Wednesday, November 4, 2009

So much to say!!!

I am so sorry it has taken so long to post again. It has been a crazy month. At the first of Oct we went to the National DAN conference in Dallas. It was so amazing to go and be with so many leading Doc in the field of biomedical research, to hear and to learn and get hope from these amazing people was just what Danny and I needed. As, I go along this road of Autism there are many ups and downs that I go through but this conference renewed my hope and gave me many new ideas to try with Tucker. So those that have young children that are autistic do biomedical treatment this will improve there lives so much. I know there are many people that have questioned my decision to do biomedical and have told me that Tucker can not recover and I know that happens to all of us on this road, but to those people I say wait and see Tucker will recover I feel it in my soul I know that it is possible. Anyway, if you ever have the chance to go to one of these conferences GO. It will chance your life and the life of your child. For those that are interested I am going to post a link to the list of all the DAN doctors it will be under my important links. Please look it up and find one.
Also, we learned a little bit more about ABA. I believe I will push his hours up to 35 after the first of the year. Running a home program is not easy but I know that it is very important to the improvement of Tucker. ABA is also key to the recovery of your child, so if you are not doing ABA you need to start a program. We do Verbal Behavior so that we can teach language to him that is are big area that we need to work on. I will also put on my list of link the BCBA website so it can help all those that need help finding a certified BCBA. These are the people that can help you set up a home ABA program. With Biomedical and intense ABA I know that Tucker will recover and it will be the greatest miracle in my life. My heart is often reassured that what I am doing for him is right. Best of luck to all.

Monday, September 28, 2009

GFCF diet

Hey I am putting up some new links to the website that helped me the most with the GFCF Diet. It is great for those that are new to it and it really is a great help. The website is TACA. The links are to the right. To all the moms in Quanah or the area, yall are on the right track and keep up the good work and email me with any question I am always here to help.

Thursday, September 24, 2009

Sleep makes everything better!

OK, OK, OK my world is not over. I realized last night that I am always going to have small set backs, but that it is for my own good and the Lord is just trying to make me the person he wants me to be. My wonderful Mother-in-law told me to sit and have a good cry, eat some ice cream, and watch a good movie and go to bed and it would be better when I woke up. She was right I can see the light again. In the end I knew that my head therapist was going to move into the consulting role and cut back her hours, it just happened a little fast then I thought. It just pushed me to find a new therapist a little bit faster. So in the end it is a good thing I think. Anyway, I am now on to my next challenge and that is to find a 3rd therapist to help with some of the hours. I know I will find the right people and it will be OK, Tucker is going to get better we can do this.

Wednesday, September 23, 2009

When you Think all is well!! BAMA

Just when I think everything is going well, my head therapist tells me she found a new job. It was like I was walking down a hall and I could see the light at the end on the hall and then out of no where someone slams a door in my face and I have to find a new path. She can still do some hours but not as many so i don't know what to do. I guess the hunt is on to find a new therapist and to get them trained. I was really feeling like I was getting my family life under control and then this happens and now I have to start all over again. I know that he has to have ABA and there is just not a lot of option here so I will do what I have to. I could use all your prayers to find something wonderful.

Thursday, September 17, 2009

ABA is Amazing!!!

ABA is amazing! I wish I had started sooner. When we first found out about PDD-NOS and that Tucker had it, I started to do my research to see how we could best help him. ABA keep coming up and I just keep putting it to the back of my mind in hopes that there was something that would be easier to do with him. Then it seemed like we keep hitting brick wall after brick wall. Then one day I read something that said if you start ABA for at least 20 hours a week before the age of 3 1/2 you have a higher chance of recovering your child. In that moment I knew that I had to do whatever it took to get Tucker ABA. So for us that meant we had to start our own home program. When you first think about that it feels like there is no way anyone can do that, but the Lord is always there to guide you to where you need to be. I was guided to the best consultant in El Paso and I really mean that she is the best here. Then I found the best therapist and she has years of experience with ABA, can you believe that I found these great people in El Paso. Anyway, we have been doing the program for 2 weeks and it is amazing in that short amount of time how far he has come. He is one really smart little boy. It is so cool to see him trying so hard to speak and ask me for things. I know this is what I was looking for and it was the answer to my prayers. Some days are bad and I think does the Lord even hear me, but he hears and he is so willing to give when we are willing to listen and do what he wants us to do. I love my T-Man and he will be ok someday I just know it. As for now we will continue to do ABA and biomedical intervention and everyday watch as he improves.